Scar Tissue

Craniofacial CT scan of my skull done at Duke Univeristy Hospital on 6/5/24. The skull flap is the piece they remove to access your brain during a craniotomy. After two craniotomies and more work you can see the condition of my bone flap is poor.

I still have a hole in my head. It’s not the same one but it’s still a problem. The infection is finding the path of least resistance and this new hole is it and the old wound has closed for now.

In the past year and change, I’ve had two surgeries on my head to address the bone infection issue (the official term is osteomyelitis, which we have been told is incurable), I began a new career as a high school math teacher, suffered from a seizure during this spring break, and undergone all sorts of antibiotic prescriptions and infusions in an attempt to get this wound to heal.

I last wrote when I was undergoing Hyperberic Oxygen therapy (referred to as HBO, that was me sitting in a tube of 100% oxygen for ninety minutes a day for thirty days) and it did not help my situation. Even after surgery and concluding the oxygen therapy, the wound continued to remain open. The aftermath of the surgery was extremely painful. I still kept my long-ish hair and it felt like I was continually trying to wash away a patch of grease whenever I would wash my hair. The wound care nurse suggested I try using Dawn dishwashing soap as a shampoo. After seeing wound care and the plastic surgeon again they recommended me for another surgery to entirely remove the bone flap so that bacteria would not be present at all and no infection would be allow to remain. The side effect would be that my head would have a noticeable divot in the right side where the skull flab would be removed.

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